尼日利亚女孩患罕见怪病全身只剩头部.

　　When Rahma Haruna was six months old, her arms and legs stopped developing.

　　在她6个月大时，这个叫Rahma的女孩的四肢就停止了发育。

　　Now 19, she lives with her family in the village of Lahadin Makole, close to Kano in Nigeria.

　　现在，Rahma已经19岁了，她们一家人生活在尼日利亚的Lahadin Makole ，距Kano不远。

　　Contending with chronic pain, she is practically immobile and spends most of her waking hours in a plastic bowl, which her family transport her around in.

　　伴随着持续性的疼痛，她无法行动，一天的大部分时间只能生活在塑料盆里，被家人端来端去。

　　Her mother Fadi said: “From six months when she learnt how to sit that was when it began. She didn’t learn how to crawl.

　　她的母亲Fadi表示，“从Rahma6个月大时就开始这样生活了，那时她刚刚学会坐。她的一生都没能学会爬行和走路。”

　　“She started with a fever and that was it. Then stomach pains. Then her body parts like hands and legs. She cannot use any if the ache strikes.”

　　“她刚开始是发烧，接着肚子痛，然后四肢疼痛，无法行动。”

　　For much of her life Rahma’s family would carry her in her bowl, with her brother Fahad taking her into Kano each day to beg for handouts. However, last year a journalist, Ibrahim Jirgi, gave the family a wheelchair.

　　大多数时间里，她都只能坐在塑料盆里被家人端来端去。Rahma的兄弟Fahad每天带她去Kano城里乞讨。直到去年，才有一位叫Ibrahim Jirgi记者给她家捐赠了一辆轮椅。

　　The Haruna family also experienced an upturn in their fortunes when local freelance photographer Sani Maikatanga shared images of Rahma on social media, which prompted an inundation of requests from strangers who wanted to help in any way they could.

　　而在自由摄影师Sani Maikatanga 在社交媒体上分享了Rahma的照片后，引发了社会各界的热心人想对Haruna一家提供各种帮助。这一家的经济状况才有了好转。

　　The family are now hoping to be offered some kind of medical support.

　　这家人目前希望得到医疗援助。

　　Although Rahma has received some consultations, her condition has never been professionally diagnosed.

　　尽管有人对Rahma的情况作过了解，但其病情一直未得到专业的诊断。

　　Fahad told reporters that he takes particular care of his sister: “I help her in many ways. Bathing her is another thing I do, and taking her out every day.

　　Rahma的兄弟Fahad告诉记者，他对妹妹很照顾，“我在很多方面都帮助她。我还帮她洗澡，每天带她出去。”

　　“I feel happy whenever I see people helping her. I like taking to our relatives. She feels happy when we visit them.”

　　“当我看到有人帮助她时，我感到好开心。我喜欢带她走亲戚，那时她也特别高兴。”

　　Despite her severe disability, Rahma has entrepreneurial ambitions: “I want to start a business,” she said. “A grocery store and anything people buy, that is what I want.”

　　尽管患有严重的残疾，Rahma还有着企业家的抱负：“我想做生意。办个百货商店，那里人们什么都可以买的到。这是我的梦想。”